Author Topic: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation  (Read 3621 times)

Offline ReadsTheT&C

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There is a new study giving free genetic testing for the BRCA mutation that leads to breast cancer לא עלינו. Unfortunately, the mutation is very common in the Ashkenazi community. I asked the founder why no Sefardim and he said the mutation is thankfully not in that community due to historical factors. There is an online sign up process that takes a little under an hour, a visit to a Quest Diagnostics lab and then you hear your results from a Genetic Counselor working with the study or from your own Doctor. The person running the study is one of the preeminent cancer geneticists and oncologists in the world. Here is the link and description below:

https://www.bforstudy.com

Women and men with a BRCA gene mutation have a greater risk of developing several types of cancer.  Most of those at risk do not know that they carry a BRCA mutation.

The BFOR study provides genetic testing for common BRCA mutations for women and men of Ashkenazi (Eastern European) Jewish ancestry, age 25 or older, in four U.S. metropolitan areas. 95% of American Jews are Ashkenazi.

Offline avromie7

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #1 on: March 21, 2018, 04:08:04 PM »
PSA: AYLOR before taking any genetic test.
I wonder what people who type "u" instead of "you" do with all their free time.

Offline churnbabychurn

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #2 on: March 21, 2018, 04:17:08 PM »
PSA: AYLOR before taking any genetic test.
Yes, but genetic testing is the future....

Offline Dan

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #3 on: March 21, 2018, 04:18:41 PM »
PSA: AYLOR before taking any genetic test.
Because?
Save your time, I don't answer PM. Post it in the forum and a dedicated DDF'er will get back to you as soon as possible.

Offline avromie7

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #4 on: March 21, 2018, 04:19:46 PM »
Because?
Many assur it, because it's a lack of bitachon.
I wonder what people who type "u" instead of "you" do with all their free time.

Offline yelped

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #5 on: March 21, 2018, 04:26:07 PM »
Many assur it, because it's a lack of bitachon.
Source? Most Poskim are very pro initiatives such as Dor Yeshoren.

Offline avromie7

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #6 on: March 21, 2018, 04:33:49 PM »
Source? Most Poskim are very pro initiatives such as Dor Yeshoren.
Of all genetic testing, Dor Yesharim is the least controversial, and even Dor Yesharim was very controversial when it started, and is still not universally accepted. R' Moshe was very against Dor Yesharim. Many who approve of Dor Yesharim would not approve of any other genetic testing.
I wonder what people who type "u" instead of "you" do with all their free time.

Offline aygart

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #7 on: March 21, 2018, 04:55:08 PM »
Source? Most Poskim are very pro initiatives such as Dor Yeshoren.
Such as?
Feelings don't care about your facts

Offline aygart

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #8 on: March 21, 2018, 04:57:11 PM »
Because?
What does someone single who finds out that they have this mutation do? Do they need to tell any prospective spouse that they have a gene which would leave a 25% chance that their child would be more susceptible to types of cancer?
Feelings don't care about your facts

Offline Dan

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #9 on: March 21, 2018, 04:58:23 PM »
What does someone single who finds out that they have this mutation do? Do they need to tell any prospective spouse that they have a gene which would leave a 25% chance that their child would be more susceptible to types of cancer?
And if you're married?
Save your time, I don't answer PM. Post it in the forum and a dedicated DDF'er will get back to you as soon as possible.

Offline aygart

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #10 on: March 21, 2018, 05:05:37 PM »
And if you're married?
With or without children? Siblings?
Feelings don't care about your facts

Offline churnbabychurn

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #11 on: March 21, 2018, 06:10:21 PM »
After being mekayem pru urvu, I would like to think that genetic testing of all couples, for all prevelent diseases (jscreen), should be recommended.

Offline avromie7

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #12 on: March 21, 2018, 06:35:53 PM »
After being mekayem pru urvu, I would like to think that genetic testing of all couples, for all prevelent diseases (jscreen), should be recommended.
What about bitachon?
I wonder what people who type "u" instead of "you" do with all their free time.

Offline churnbabychurn

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #13 on: March 21, 2018, 06:45:05 PM »
What about bitachon?
We're talking about a very minimal amount of hishtadlus, vs remote posibility of catastrophic issues.

If the tests would entail massive costs and inconveniences, then we could discuss bitachon. But a cheek swab is a joke.

Offline avromie7

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #14 on: March 21, 2018, 08:33:17 PM »
We're talking about a very minimal amount of hishtadlus, vs remote posibility of catastrophic issues.

If the tests would entail massive costs and inconveniences, then we could discuss bitachon. But a cheek swab is a joke.
-1 the amount of work is irrelevant. You can't play God.
I wonder what people who type "u" instead of "you" do with all their free time.

Offline sky121

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #15 on: March 21, 2018, 08:43:44 PM »
-1 the amount of work is irrelevant. You can't play God.
No but wouldn't someone who in theory has a higher chance of developing cancer maybe make a better effort to pay attention to symptoms and better at self exams etc? Is that not hishtadlus?

I personally don't know a hundred percent how I feel about this but definitely feel like you can argue hishtadlus. Especially when it may run in someone's family etc.

"Not all who wander are lost"

Offline churnbabychurn

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #16 on: March 21, 2018, 09:17:00 PM »
-1 the amount of work is irrelevant. You can't play God.
If the information is readily available, and you put on blinders, that is playing stupid. Taking a peek is not gd. Just modern science. (Just presenting the aurgument).

Offline avromie7

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #17 on: March 21, 2018, 09:21:42 PM »


No but wouldn't someone who in theory has a higher chance of developing cancer maybe make a better effort to pay attention to symptoms and better at self exams etc? Is that not hishtadlus?

I personally don't know a hundred percent how I feel about this but definitely feel like you can argue hishtadlus. Especially when it may run in someone's family etc.
it would be dependant on how common it is, and what the risks are if someone tests positive. That's why I said AYLOR
I wonder what people who type "u" instead of "you" do with all their free time.

Offline avromie7

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #18 on: March 21, 2018, 09:23:35 PM »
If the information is readily available, and you put on blinders, that is playing stupid. Taking a peek is not gd. Just modern science. (Just presenting the aurgument).
Would you also say not to use any item that's knows to the state of California to cause cancer?
I wonder what people who type "u" instead of "you" do with all their free time.

Offline @Yehuda

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Re: Free Genetic Testing-BFor Study for Ashkenazi Jews-BRCA Mutation
« Reply #19 on: March 21, 2018, 10:36:52 PM »
Of all genetic testing, Dor Yesharim is the least controversial, and even Dor Yesharim was very controversial when it started, and is still not universally accepted. R' Moshe was very against Dor Yesharim. Many who approve of Dor Yesharim would not approve of any other genetic testing.
In my circles, Dor Yesharim is the most controversial.