Author Topic: Help Raphael Elisha Meir ben Devorah Cohen  (Read 12028 times)

Offline Dan

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Re: Please sign this petition!
« Reply #20 on: December 05, 2013, 09:22:28 PM »
the last paragraph sounds a little foolish but its true. Doctors gave up. Why not try?
Probably because it's quackery.
http://en.wikipedia.org/wiki/Quackery
Save your time, I don't answer PM. Post it in the forum and a dedicated DDF'er will get back to you as soon as possible.

Offline plainbachur

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Re: Please sign this petition!
« Reply #21 on: December 05, 2013, 09:23:45 PM »
So EECB the FDA, senators, representatives, governors, etc.
WTP is silliness.
I'm sure they are trying everything this is just another outlet. Why not its free. Maybe this will raise media attention. Maybe one person in a senior position in the FDA will read it and persuade their decision

Offline plainbachur

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Re: Please sign this petition!
« Reply #22 on: December 05, 2013, 09:31:11 PM »

Offline Racer7400

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Re: Please sign this petition!
« Reply #23 on: December 06, 2013, 09:31:28 AM »
Signed

Offline MaaYanky

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Please Sign This Petition To Save A Life
« Reply #24 on: December 08, 2013, 02:30:24 AM »
Please take a minute of your time to read this letter from a frum couple who is asking you help to help save their childs life. No money is needed. You just need to take minute of your time to sign a petition on the White House website to try and help save this girls life. Thanks.  
Dear Friends,
Please help us spread the word! We need 100,000 signatures  for the White House to consider granting us approval  for a medicine that has the potential to save our 6 year old son and 2 other kids with rare brain tumors.We would really appreciate if you could sign and pass on!
Much Thanks!
Devorah & Yaakov Cohen   
https://petitions.whitehouse.gov/petition/authorize-fda-grant-compassionate-use-exemption-refael-elisha-cohen-antineoplaston-therapy/BVSP1ZkW

Offline whYME

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Re: Please Sign This Petition To Save A Life
« Reply #25 on: December 08, 2013, 02:59:44 AM »

Offline tzeekee123

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Re: Please Sign This Petition To Save A Life
« Reply #26 on: December 08, 2013, 03:15:06 AM »
Done, and shared on my fb page.

Offline moish

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Re: Please sign this petition!
« Reply #27 on: December 08, 2013, 12:16:18 PM »
signed

Offline YosefG

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I received this From Rabbi Mansour's Daily Halacha email.   

"The Cohen family, of Houston, TX, is facing a battle none of us should have to go through - aggressive brain cancer in their 6-year old son Refael Elisha (Refael Elisha Meir ben Devorah). Having recently received the devastating news from their doctors that "there is nothing more we can do for him", the Cohens are turning to a last resort - Antineoplaston Therapy at the Burzyinski clinic. However, the FDA pulled their approval for this treatment in 2012 pending further clinical trials. They are told that the FDA is nearing approval to resume this treatment, but Refael Elisha does not have time to wait.

The FDA has the power to approve a "compassionate use exemption" so Refael Elisha can undergo this therapy to try and save his life.

The family is asking the White House to urge the FDA to grant this exemption so they can continue to fight for his life.
 
100,000 signatures are needed in order for the White House to consider this. Sign the petition here:

https://petitions.whitehouse.gov/petition/authorize-fda-grant-compassionate-use-exemption-refael-elisha-cohen-antineoplaston-therapy/BVSP1ZkW

Please pass on the message to all your contacts. Refael Elisha Meir needs your help!"

Offline E-MAN

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Re: Please sign this petition!
« Reply #29 on: December 09, 2013, 03:52:20 PM »
Signed

Offline jmansour

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Re: Please sign this petition!
« Reply #30 on: December 09, 2013, 03:54:06 PM »
signed

Offline henche

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Re: Please sign this petition!
« Reply #31 on: December 09, 2013, 04:03:19 PM »
I signed because they asked me to. I'm happy to do it even if it just makes them feel good that I people cared enough to make a big campaign for them.

I'll not express my opinion on the wisdom of doing that treatment; it's too sensitive. I would express it after they do it or don't though.

Offline Myccrabbi

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Re: Please sign this petition!
« Reply #32 on: December 09, 2013, 06:23:58 PM »
Signed
If u work for a living, why kill urself working?

Offline fc

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Help Raphael Elisha Meir ben Devorah Cohen
« Reply #33 on: December 10, 2013, 05:50:51 PM »
link to fundraising site:

http://www.youcaring.com/medical-fundraiser/help-raphael-elisha-meir-ben-devorah-cohen/104108


Dear family and friends in Houston and around the world,

Elisha Cohen's war against cancer rages on. It has been a very challenging year that has taken a toll on the Cohen family. Their beloved 5 year old boy, Raphael Elisha Meir, was diagnosed with  Anaplastic medulla blastoma brain and spine cancer in October, 2012. The day after Elisha was diagnosed, Elisha underwent surgery during which 70% of the tumor was removed. Following his surgery, Elisha suffered from posterior Fossa mutism syndrome, a common, debilitating side effect of neurosurgery which causes decreased muscle tone. This left Elisha unable to speak, eat, and walk.  Elisha had a very difficult year dealing with proton radiation therapy followed by chemotherapy. At the same time, Elisha underwent a rehabilitation process that has painfully helped him resume somewhat normal childhood activities once again. Elisha now talks, but he is still unable to swallow or walk. In June of 2013, Elisha received promising news that his tumor had been eliminated following an MRI scan. However, in early September of 2013, Elisha had his second MRI and received unthinkable news that the Cohen family was unprepared to hear. The doctors at the Texas Children Hospital observed that the tumor had returned and declared that Elisha's cancer had relapsed. This was devastating news for the Cohen's after physicians uttered the horrifying statement that, "nothing else that could be done for their sweet Elisha."

 

The Cohen family has been fighting this entire past year thinking that the worst was behind them, only to learn that their worst fear and nightmare became their new reality. There is very little research that has been done on this rare form of cancer. Even more disheartening, if there is a treatment for medulla blastoma, Elisha is ineligible because of his young age and his inability to swallow. In a desperate search for a non-toxic treatment and/or drug that could save Elisha's life, the Cohen's have identified an expensive drug. Elisha's parents feel that they shouldn't give up on fighting cancer. This is a desperate situation in which no one should ever be placed.  Now, the parents are financially challenged and are struggling to cover their basic living expenses while purchasing the aforementioned drugs which are not covered by the family's medical insurance drug plan. Elisha's parents are not working at present since they are both helping Elisha battle cancer. As a result, friends of the Cohen family have decided to attempt fundraising money for this family in order help alleviate the financial stress currently plaguing this already emotionally drained family. Please join us in making a difference in this family's life, a family committed to Torah, mitzvoth, and love of their fellow Jew.  You can donate whatever you feel comfortable with; everything counts. Also, you could forward or share this with your friends. The most we can do is help ease their financial plight.

 

Since we are using youcaring.com as the vehicle for accepting your generous donations, you can be confident in knowing that the aforementioned website is secure, and your credit card information will be protected. They do not charge a fee for running the site so all proceeds go directly to the Cohen family.

 

Thank you very much for your kindness and thoughtfulness. In the merit of your tzedakah and mitzvah may we see a complete refuah for Raphael Elisha Meir ben Devorah and all of those in need.  May you all be blessed with long lives and enduring health.


Update (11/13/2013):


The Cohen family is overwhelmed by the kindness and generosity of so many who have contributed over the course of the past days. With thanks to Hashem, the initial goal of $25,000 was met. Raphael Elisha Meir remains critically ill, but your help has given the family renewed hope.


The Cohens, out of modesty, did not want to ask for the amount they truly need. The reality though is that this wonderful family needs more than $25,000 to pay for the investigational medications from Israel and the doctors to administer it. None of these medical costs are covered by insurance. They also have to cover the basic necessities of life to support their entire family, including Raphael Elisha Meir's brothers and sisters. Rabbi and Devora Cohen are not working as they devote 24 hours a day to the needs of their little boy.


We ask that you please continue to share this website with as many people as you can via Facebook, Twitter, Email, etc. Please continue to give and ask your friends, coworkers, family members and your entire network to contribute the money and prayers that the Cohens so desperately need. Thank you so much and through the merit of your love and kindness may our prayers be answered.



Update (12/4/2013):


Dear friends and supporters of Refael Elisha Meir ben Devorah,

 

The Cohen family is deeply grateful for your prayers, kind words of support, and assistance. Refael Elisha continues to bravely battle the cancer that has ravaged him. It is a fight no six year old child should ever have to endure, yet this sweet, beautiful little boy is courageously taking each day as it comes.

 

The Cohens are pursuing alternative and experimental treatments to bolster the months of traditional chemotherapy and radiation therapy treatments that Refael Elisha has undergone. Insurance does not cover the costs of these treatments and maintenance, but they may be the only hope left in the face of the doctors telling Refael Elisha’s parents that there is nothing else to be done. They are expensive and there are few options left.

 

We can’t give up and we need your help now, more than ever!   

 

Please continue to open your hearts and give to help the Cohens continue the fight against the medullah blastoma cancer that has attacked Refael Elisha. This devoted family is leaving no stone unturned, but they simply cannot do it without you.

 

In addition to the medical costs, the day-to-day expenses for a family of eight continue to add up. This beautiful family has given so much to the community. Please, help them with however much you can. Every dollar counts. We pray to the Holy One Blessed be He that your continued generosity and kindness merit a complete and total refuah shlema (healing) for Refael Elisha Meir ben Devorah.   

Offline fc

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Re: Please sign this petition!
« Reply #34 on: December 10, 2013, 06:06:32 PM »

Offline meshugener

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Re: Help Raphael Elisha Meir ben Devorah Cohen
« Reply #35 on: December 10, 2013, 06:07:32 PM »
Are you aware of the 5-10 threads about this?
Love me or hate me. I still love you.

Offline fc

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Re: Help Raphael Elisha Meir ben Devorah Cohen
« Reply #36 on: December 10, 2013, 08:58:44 PM »
with the donation link? or about the petition?

Offline aryeh1

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Offline yehuda S

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Re: Please sign this petition!
« Reply #38 on: December 11, 2013, 12:32:26 AM »

I believe this is the other side of story
http://www.usatoday.com/story/news/nation/2013/11/15/stanislaw-burzynski-cancer-controversy/2994561/
Wow! How are 48,000 petition signers not aware of this quackery. That guy sounds like an evil nutjob. I know people will try anything when they are desperate but maybe they should try out the Vaad Tikkun Chatzos of Kaballah Learners at the Kotel for 40 Day Periods before giving their sick child to this guy who sounds criminally insane.
Work is what you do between vacations.

Offline Centro

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Re: Please sign this petition!
« Reply #39 on: December 11, 2013, 12:36:04 AM »
Wow! How are 48,000 petition signers not aware of this quackery. That guy sounds like an evil nutjob. I know people will try anything when they are desperate but maybe they should try out the Vaad Tikkun Chatzos of Kaballah Learners at the Kotel for 40 Day Periods before giving their sick child to this guy who sounds criminally insane.
Rofl